woolrich bambino through the efforts of porcelain dolls Foundation

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Significant effect one day about 900 donationsAfter the Foundation launched a Chinese porcelain doll ice bucket challenge, has about 900 people Foundation donation, donation amount of $ 40,000, of which it was involved in the ice bucket challenge,woolrich bambino, some people are aware of this rare disease after active contributions to the Foundation The. and colleagues did not think the effect of this activity is so obvious, statistical work yesterday  and colleagues almost to busy,hogan outlet, the usual porcelain doll's official microblogging fans can only increase six or seven people a day, yesterday, the official micro-fans about an increase of nearly 600 people,scarpe outlet online, is usually 100 times the amount of the increase. said, porcelain dolls Foundation more than attention getting cold,peuterey prezzi, there are thousands of rare diseases worldwide species, including bone diseases, blood diseases and neurological diseases, will try to raise the money to help all the rare diseases the patient.For online questioned the hype thing Zhanghao Yu and his colleagues thought very open. In the current media environment, some charity fundraiser convert traditional form Zhanghao Yu feel that we can understand, and have to admit that the effect of this public service activities spread is obvious, of course, but he and his colleagues hope that more people are concerned about those behind the game hiding in the corner of the patients who had been ignored.
but ultimately hope to achieve the purpose of concern rare disease patients.The timing of the event, Wang Yi Ou said there is no clear plan, "because the activity itself porcelain doll Foundation and can not directly control." Wang Yi Ou said that now when it could end communication networks do not say, but a porcelain doll Foundation Donations will be long-term community.Wang Yi Ou guarantee that these funds will be used for rare diseases in medical expenses,bracciale tiffany, education,tiffany outlet italia, employment and self-realization, to help patients with a rare ability to improve life in this society based.Rescue stories sick sister take the opportunity to give his sisterWang Yi Ou said that the biggest problem faced by rare diseases in addition to medical care as well as education and employment outside. In early 2009,christian louboutin soldes, a porcelain doll Foundation received a letter from the mountains of Guizhou,louboutin pas cher femme, the girl suffering from a rare disease appeal letter.16-year-old girl Cheng Juan (a pseudonym) as suffering from osteogenesis imperfecta.
there is no effective treatment. Many people in charity donations when there is a kind of "enough money to be able to cure," the traditional thinking,escarpin louboutin pas cher, there is no cure for a rare disease that many people do not want to lend a helping hand.In the eyes of Wang Yi Ou, the meaning is more ice bucket challenge is to make more people know about rare diseases,toms cheap sale, "an ALS patient may live only a few years, although that might die after a few years, but this does not mean that rare diseases respect by society to abandon. "Wang Yi Ou hope that through this event,moncler milano, so that more patients can come to a rare disease in the public eye, and thus on the health, education and employment problems can get attention.Now, many people questioned the hype online nature of the activity. Wang Yi Ou believes that these mind involved celebrities and public persons may vary.
there has been no opportunity to attend school due to genetic reasons,doudoune moncler solde, Cheng Juan 13-year-old sister is also suffering from the disease. The growth of the disease in patients with bone deformity occurs, the patient stunted limbs and other parts,giuseppe heels, resulting in patient mobility.The ability of the Foundation to time, only for a child surgery, Cheng Juan secretly told staff porcelain dolls,piumini peuterey, if only one of those places, then the opportunity to give his sister. See the sisters, the Wang Yi Ou and her team who are very sad,tiffany orecchini, through the efforts of porcelain dolls Foundation,woolrich milano, linked to other caring agencies,air max femme, and ultimately the two sisters have done the surgery.Before the surgery.
but also appeal to everyone with these rare diseases become friends. said the amount of money raised and the number of people participating in the activities will have on the "Porcelain Doll" and on the official website of the official microblogging publicly. There are friends want to participate can participate to understand the way the official microblogging.Foundation focuses on activities in response to the introduction of the rare patient group concernedThis morning, porcelain dolls Foundation, Wang Yi Ou said in an interview with reporters, according to World Health Organization standards, the incidence of between 0.6  � and 1  � illness can be regarded as a rare disease, this means that China is about five 1000-6000 kinds of rare disease, Amyotrophic Lateral Sclerosis patients in China, about 2 million people.Wang Yi Ou frankly, fundraising rare diseases Foundation has been a challenge. As a rare disease is not as leukemia, heart disease and other diseases to the public familiar with the rare disease patient has been living in the corner of society where people rarely understand,parka woolrich, "the name of a rare disease is very long, very few people remember , but no one will understand. "Wang Yi Ou said.In addition, a rare disease is different from leukemia, cancer and other diseases, the lack of effective treatment. Wang Yi Ou introduced the world 99% of rare diseases are caused due to genes, which means that patients with this disease will be accompanied by a lifetime.
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